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Children/Young Adults

Engaging Research Participants in Disseminating Health Experiences Research

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*Free registration is required to use the toolkits provided within HIPxChange. This information is required by our funders and is used to determine the impact of the materials posted on the website.

  • Young adults

Type 1 Diabetes Self-Management Resources Toolkit (T1D-SMART)

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*Free registration is required to use the toolkits provided within HIPxChange. This information is required by our funders and is used to determine the impact of the materials posted on the website.

BESt: Breastfeeding and Employment Study Survey

*Free registration is required to use the toolkits provided within HIPxChange. This information is required by our funders and is used to determine the impact of the materials posted on the website.

Employee, Manager, and Organization Surveys on Breastfeeding Support in the Workplace

Issues faced by breastfeeding mothers in the U.S.

  • Working mom

Partnering with Parents of Hospitalized Children Using an Inpatient Portal

*Free registration is required to use the toolkits provided within HIPxChange. This information is required by our funders and is used to determine the impact of the materials posted on the website.

  • Doctor Parent Tablet

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS)

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a set of planning materials for researchers and others who want to engage hard-to-reach stakeholders as advisors on patient-centered projects, including patient-centered outcomes research (PCOR).

HARPS contains the following materials:  

  • The roadmap, a fillable workbook that uses 10 guiding questions and supplemental Appendices to help develop ideas and plans for successful engagement of stakeholders.
  • An 80-minute workshop video that discusses the 10 guiding questions in the roadmap and addresses key considerations for patient stakeholder engagement.
  • 22 supplemental videos (approximately 20-60 seconds each) that feature patient stakeholders, community partners, and researchers discussing key topics related to engagement.
Authors: Betty Kaiser, Gay Thomas, Elizabeth Cox
  • Diverse group of people

School-Based Asthma Management Program

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*Free registration is required to use the toolkits provided within HIPxChange. This information is required by our funders and is used to determine the impact of the materials posted on the website.

  • School-Based Asthma Management Program

Problem Recognition in Illness Self-Management (PRISM) Survey

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*Free registration is required to use the toolkits provided within HIPxChange. This information is required by our funders and is used to determine the impact of the materials posted on the website.

  • Girl with diabetes

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