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Engagement in Research

Type 1 Diabetes Self-Management Resources Toolkit (T1D-SMART)

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Engaging Veterans in Research Toolkit

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Patient Engagement Workbook for Researchers

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  • Patient Engagement in Research

Partnering with Parents of Hospitalized Children Using an Inpatient Portal

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  • Doctor Parent Tablet

How to Approach Recruiting and Retaining Patient Stakeholders: An Engagement Guide (HARPS)

How to Approach Recruiting and Retaining Patient Stakeholders: An Engagement Guide (HARPS) is a set of planning materials for researchers and others who want to engage hard-to-reach stakeholders as advisors on patient-centered projects, including patient-centered outcomes research (PCOR).

HARPS contains the following materials:  

  • The roadmap, a fillable workbook that uses 10 guiding questions and supplemental Appendices to help develop ideas and plans for successful engagement of stakeholders.
  • An 80-minute workshop video that discusses the 10 guiding questions in the roadmap and addresses key considerations for patient stakeholder engagement.
  • 22 supplemental videos (approximately 20-60 seconds each) that feature patient stakeholders, community partners, and researchers discussing key topics related to engagement.
Authors: Betty Kaiser, Gay Thomas, Elizabeth Cox
  • Diverse group of people

Sustaining Engagement of Blended Stakeholder Boards

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Deeply Engaging Patients with a Mix & Match of Methods

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About the Training

The Patient-Centered Outcomes Research Institute (PCORI) defines "engagement in research" as:

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