Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a set of planning materials for researchers and others who want to engage hard-to-reach stakeholders as advisors on patient-centered projects, including patient-centered outcomes research (PCOR).
HARPS contains the following materials:
The roadmap, a fillable workbook that uses 10 guiding questions and supplemental Appendices to help develop ideas and plans for successful engagement of stakeholders.
An 80-minute workshop video that discusses the 10 guiding questions in the roadmap and addresses key considerations for patient stakeholder engagement.
22 supplemental videos (approximately 20-60 seconds each) that feature patient stakeholders, community partners, and researchers discussing key topics related to engagement.
Authors: Betty Kaiser, Gay Thomas, Elizabeth Cox